Swim 22 challenge

Hello, my name is Becky and I’m the Trials Support Officer based at the University of Sheffield working on the DAFNEplus Project.

I’ve been working on the trial for 6 months now, and when I first started another Trials Support Officer, Jess, asked if in February I’d join in the Swim 22 challenge for Diabetes UK as a team. Thinking it’d be fun and for a good cause I said yes, and now here we are.

It started on the 22nd February and we have 12 weeks to swim 22 miles, the equivalent of the English Channel, and all the sponsor money goes to Diabetes UK. We’ve named the team Bend it like Biondi (after the swimmer) and we have currently swam 11.47 miles between us (32.53 miles to go!).

Since working on DAFNEplus I’ve learnt a lot about the lives of those with Type 1 diabetes and know that doing this swim will hopefully raise money to make living with the condition a lot easier.  The challenge is proving to be quite tough already, I’m not sure I quite understood how far 22 miles really was!

If you’d like to sponsor our team, and see our progress we have a Justgiving page set up here

Thank you to all those that have sponsored so far, and I’ll be back to reflect on how the whole challenge went when it’s completed in May.

 

Becky Brown

DAFNEplus Trials Support Officer

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DAFNEplus: have ‘your say’ on quality of life

As those who are familiar with DAFNE (Dose Adjustment for Normal Eating) will know, one of its central objectives has always been to improve quality of life. Before we set out on the DAFNE trial back in 1999, we already knew that diabetes affects people’s quality of life in many ways – and that for many, diabetes damages their quality of life.

In the DAFNE trial published in the BMJ, we showed at baseline that, on average, diabetes and its management compromised quality of life. We also showed that attending a 5-day DAFNE course reduced this negative impact 6 months later, and improved overall quality of life. In a follow-up study, we showed that improvements in quality of life were maintained almost 4 years later.

Quality of life cannot be assessed with blood or other medical tests. Quality of life is subjective – it is only truly known by the individual – so it is not even appropriate to ask a health professional to provide a ‘proxy’ assessment of a person’s quality of life.

Another challenge is that quality of life means different things to different people, at different times. There are now many ways to assess the impact of diabetes on quality of life.

We are now preparing for the DAFNEplus trial. And we want to use the best measure to assess the impact of the program on quality of life. This is where we need your help. We think its important for you to tell us which are the best questionnaire(s) from your perspective – which are most relevant, easy to understand, easy to complete, etc.

We have put together a survey: ‘Your Self-Management and You: Quality of Life’, also known as ‘YourSAY:QoL’. In order to have an opinion, you need to complete the questionnaire and then give your feedback on what you like or don’t like about each one. We know the survey is quite long and the questions do seem repetitive but it is important to pitch these questions against each other to understand which ones work best for which purpose.

We very much hope you will get involved, click here to complete the YourSAY:QoL survey and share this blog to get as many people with diabetes involved as possible.

NB. Although DAFNEplus will only be for people with type 1 diabetes, the YourSAY:QoL survey is open to any adult with type 1 or type 2 diabetes.

by

Professor Jane Speight; Dr Elizabeth Holmes-Truscott, The Australian Centre for Behavioural Research in Diabetes (Diabetes Victoria and Deakin University)